Support for TTP

Find support and community through others living with TTP

The following groups can help connect you or your loved one with others who have TTP.*

Jo

“I think connecting with other people who have TTP can be really empowering. It can make you feel less lonely.”

–Jo, living with TTP

Answering T.T.P. Foundation
Answering T.T.P. Foundation

A Canadian TTP advocacy and support group for all people living with TTP, caring for someone with TTP, or treating TTP.

TTP network
TTPNetwork

A TTP charity and support group in the United Kingdom for all people living with TTP, caring for someone with TTP, or treating TTP.

Ree Wynn Foundation
Ree Wynn Foundation

A foundation in the United States whose mission is to provide education and promote awareness of TTP to reduce mortality and enhance quality of life for those living with TTP.

Britt Balser Foundation
Britt Balser Foundation

A foundation in the United States whose mission is to provide support to doctors and medical centers researching TTP.

Orphanet
Orphanet

A unique resource for gathering and improving knowledge of rare diseases.

EURODIS
EURORDIS

A European non-governmental patient-driven alliance of patient organizations representing 970 rare disease patient organizations across 74 counties.

National Organization for Rare Disorders (NORD)

A patient advocacy organization dedicated to people with rare diseases and the organizations that serve them.

Global Genes
Global Genes

A global community dedicated to helping patients affected by rare disease find and build communities, gain access to information and resources, and become effective advocates.

Note that the opinions expressed by the organizations above do not necessarily reflect the views of Sanofi Genzyme. Sanofi Genzyme does not maintain and is not responsible for the content of communications for the listed organizations or their websites. This is not intended to be a comprehensive list of aTTP disease support organizations. These listings do not constitute an endorsement by Sanofi Genzyme of information provided by any other organizations.

*Sites and organizations are not affiliated with Sanofi Genzyme.