Getting to know your TTP care team

Many different healthcare providers may help treat TTP during and after an episode

You will probably see certain members of your care team when you’re in the hospital and some others after you go home. Because everyone’s TTP needs are different, you may not have the exact healthcare team listed below.

Your TTP Care Team—In the Hospital

Hematologist/Hematologist-Oncologist

Hematologist

What they do

A hematologist is a doctor who cares for people with blood disorders. Some hematologists are hematologist-oncologists, doctors who focus on both blood disorders and cancer.

Role in treating TTP

The hematologist is likely to be your main point of contact while in the hospital. They will talk to you about TTP and your treatment plan.

Nephrologist

Nephrologist

What they do

A nephrologist is a doctor who focuses on conditions that can affect the kidneys.

Role in treating TTP

At some hospitals, nephrologists administer TTP treatment. If that’s the case at your hospital, the nephrologist may be your main point of contact. They will likely work with a hematologist on your treatment plan.

Pathologist or Transfusion Medicine Specialist

Pathologist or Transfusion Medicine Specialist

What they do

A pathologist studies the causes and effects of conditions. A pathologist can also specialize in transfusion medicine. A transfusion medicine specialist is an expert in blood banking and transfusions.

Role in treating TTP

The pathologist or transfusion medicine specialist may work with your hematologist or nephrologist to help find the cause of your symptoms and determine whether you have TTP. The pathologist may also be the one to give you your TTP treatment.

Nurses

Nurses

What they do

Nurses will assist throughout your treatment at the hospital and when it’s time for you to go home.

Your TTP Care Team—
In the Hospital

Hematologist/Hematologist-Oncologist

Hematologist

What they do

A hematologist is a doctor who cares for people with blood disorders. Some hematologists are hematologist-oncologists, doctors who focus on both blood disorders and cancer.

Role in treating TTP

The hematologist is likely to be your main point of contact while in the hospital. They will talk to you about TTP and your treatment plan.

Nephrologist

What they do

A nephrologist is a doctor who focuses on conditions that can affect the kidneys.

Role in treating TTP

At some hospitals, nephrologists administer TTP treatment. If that’s the case at your hospital, the nephrologist may be your main point of contact. They will likely work with a hematologist on your treatment plan.

Pathologist or Transfusion Medicine Specialist

Pathologist or Transfusion
Medicine Specialist

What they do

A pathologist studies the causes and effects of conditions. A pathologist can also specialize in transfusion medicine. A transfusion medicine specialist is an expert in blood banking and transfusions.

Role in treating TTP

The pathologist or transfusion medicine specialist may work with your hematologist or nephrologist to help find the cause of your symptoms and determine whether you have TTP. The pathologist may also be the one to give you your TTP treatment.

Nurses

Nurses

What they do

Nurses will assist throughout your treatment at the hospital and when it’s time for you to go home.

The members of your care team that you see and talk to most often will probably change after you leave the hospital. However, they have the same goal as your team from the hospital: to keep you healthy.

Your TTP Care Team—After the Hospital

Hematologist/Hematologist-Oncologist

Hematologist

Your hematologist or hematologist-oncologist will continue to monitor your TTP after you leave the hospital. Check in with your hematologist as often as your care team recommends after leaving the hospital.

Primary Care Physician

Primary Care Physician

Your primary care physician may want to check in regularly on your TTP recovery and can help monitor you for another TTP episode.

Nurses

Nurses

Nurses may assist with any TTP treatment that continues at home after the hospital.

Your TTP Care Team—
After the Hospital

Hematologist/Hematologist-Oncologist

Hematologist

Your hematologist or hematologist-oncologist will continue to monitor your TTP after you leave the hospital. Check in with your hematologist as often as your care team recommends after leaving the hospital.

Primary Care Physician

Primary Care Physician

Your primary care physician may want to check in regularly on your TTP recovery and can help monitor you for another TTP episode.

Nurses

Nurses

Nurses may assist with any TTP treatment that continues at home after the hospital.

References:
  1. Scully M, Hunt BJ, Benjamin S, et al; British Committee for Standards in Haematology. Guidelines on the diagnosis and management of thrombotic thrombocytopenic purpura and other thrombotic microangiopathies. Br J Haematol. 2012;158(3):323-335. doi:10.1111/j.1365-2141.2012.09167.x
  2. Joly BS, Coppo P, Veyradier A. Thrombotic thrombocytopenic purpura. Blood. 2017;129(21):2836-2846. doi:10.1182/blood-2016-10-709857
  3. Gallan AJ, Chang A. A new paradigm for renal thrombotic microangiopathy. Semin Diagn Pathol. 2020;37(3):121-126. doi:10.1053/j.semdp.2020.01.002