TTP resources for you

The International Society on Thrombosis and Haemostasis (ISTH) TTP Guidelines

The ISTH TTP Guidelines are the first evidence-based, international guidelines on the diagnosis, treatment, and management of TTP. The guidelines emphasize the importance of diagnosis through clinical assessment or risk assessment tools, such as the French or PLASMIC score. Clinical assessment can help predict the likelihood of severe ADAMTS13 deficiency in a patient with suspected TTP and guide treatment decisions.1

Inform your approach to thrombotic thrombocytopenic purpura (TTP) treatment by understanding key clinical considerations and therapeutic options.

TTP resources for your patients

UnderstandingTTP.com (patient website)

The patient version of this website educates people being evaluated for, or diagnosed with, TTP to help them understand TTP and how they can work with their doctors to manage it.
Open in a new page

Support and community with others living with TTP

The following groups can provide support and help connect you and your patients with others in the TTP community.*

Answering T.T.P. Foundation

Answering TTP Foundation

A Canadian TTP advocacy and support group for all people living with TTP, caring for someone with TTP, or treating TTP.

TTP network

TTPNetwork

A TTP charity and support group from the United Kingdom for all people living with TTP, caring for someone with TTP, or treating TTP.

Ree Wynn Foundation

Ree Wynn Foundation

A foundation in the United States whose mission is to provide education and promote awareness of TTP to reduce mortality and enhance quality of life for those living with TTP.

Britt Balser Foundation

Britt Balser Foundation

A foundation in the United States whose mission is to provide support to doctors and medical centers researching TTP.

Orphanet

Orphanet

A unique resource for gathering and improving knowledge of rare disease.

EURODIS

EURORDIS

A European non-governmental, patient-driven alliance of patient organizations representing 970 rare disease patient organizations across 74 countries.

National Organization for Rare Disorders (NORD)

A patient advocacy organization dedicated to people with rare disease and the organizations that serve them.

Global Genes

Global Genes

A global community dedicated to helping patients affected by rare disease find and build communities, gain access to information and resources, and become effective advocates.

Note that the opinions expressed by the organizations above do not necessarily reflect the views of Sanofi Genzyme. Sanofi Genzyme does not maintain and is not responsible for the content of communications for the listed organizations or their websites. This is not intended to be a comprehensive list of aTTP disease support organizations. These listings do not constitute an endorsement by Sanofi Genzyme of information provided by any other organizations.

*Sites and organizations are not affiliated with Sanofi Genzyme.

Reference:
  1. Zheng XL, Vesely SK, Cataland SR, et al. ISTH guidelines for the diagnosis of thrombotic thrombocytopenic purpura. J Thromb Haemost. 2020;18(10):2486-2495. doi:10.1111/jth.15006