The voices of TTP: Patients share their stories
Each person with thrombotic thrombocytopenic purpura (TTP) has a unique experience and story to tell. Saida and Jo explain their challenging journeys to diagnosis and what living with TTP has been like. Claudia shares her thoughts as a care partner to her adult daughter with TTP.
Saida’s TTP story
Saida shares her road to diagnosis of TTP, the impact of her condition, and her hope for the future.
“My hope for the future is that every patient that has TTP gets treated quickly and efficiently.”
Jo’s TTP story
Jo discusses her journey living with TTP and how she manages the challenges of the disease.
“Don’t delay…if you do feel you’re relapsing and you’re seeing lots of bruising or the pinprick rash, then don’t be scared. Go and see a doctor because the sooner you get it treated, the better the outcome.”
Claudia’s perspective
Claudia shares how healthcare professionals can further help patients and care partners.
“Just listen to her and let her bring whoever she needs there to help her, support her.”